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Private Foundation · NY

Spinal Muscular Atrophy Foundation

New York, NY  ·  EIN 010759380  ·  Website ↗  ·  990s on ProPublica ↗

Assets

$50.2M

Total Giving

$2.5M

Grants on File

16

Average Grant

$154K

Giving Radius

Where Spinal Muscular Atrophy Foundation Has Given

AK — no grants on file AL — no grants on file AR — no grants on file AZ — no grants on file CA — $1.9M across 9 grants CO — no grants on file CT — no grants on file DC — no grants on file DE — no grants on file FL — $99K across 1 grant GA — no grants on file HI — no grants on file IA — no grants on file ID — no grants on file IL — no grants on file IN — no grants on file KS — no grants on file KY — no grants on file LA — no grants on file MA — $142K across 2 grants MD — no grants on file ME — no grants on file MI — no grants on file MN — no grants on file MO — no grants on file MS — no grants on file MT — no grants on file NC — no grants on file ND — no grants on file NE — no grants on file NH — no grants on file NJ — no grants on file NM — no grants on file NV — no grants on file NY — $282K across 3 grants OH — no grants on file OK — no grants on file OR — no grants on file PA — $13K across 1 grant RI — no grants on file SC — no grants on file SD — no grants on file TN — no grants on file TX — no grants on file UT — no grants on file VA — no grants on file VT — no grants on file WA — no grants on file WI — no grants on file WV — no grants on file WY — no grants on file
Historical grants to 6 recipients across 5 states. Top concentrations: PALO ALTO ($1.9M, 9 grants), NEW YORK ($229K, 2 grants), BOSTON ($142K, 2 grants), GAINESVILLE ($99K, 1 grant), ROCHESTER ($53K, 1 grant).

Section I

How to Apply

No application guidelines on file — check the foundation's website directly.

On Unsolicited Proposals no

Section IV

Recent Grants

Recipient Amount Year
Children's Hospital of Boston $89K 2020
Columbia University $150K 2020
Stanford University $75K 2020
Children's Hospital of Philadelphia $13K 2020
Children's Hospital of Boston $53K 2021
Columbia University $79K 2021
University of Rochester $53K 2021
Stanford University $412K 2021
Stanford University $654K 2022
Stanford University $207K 2023
Stanford University $138K 2023
Stanford University $69K 2023
Stanford University $163K 2023
Stanford University $117K 2023
University of Florida $99K 2023
Stanford University $86K 2023

16 grants total

Section V

Board of Directors

  • DINAKAR SINGH BOARD CHAIRMAN
  • DOUGLAS COLE MD DIRECTOR
  • GERALD FISCHBACH MD DIRECTOR
  • ANDREW KNIGHT DIRECTOR
  • JONATHAN LEFF DIRECTOR
  • HELEN MEATES DIRECTOR
  • STEPHEN MIKITA ESQ DIRECTOR
  • JULI OH ESQ TREASURER
  • SIMON PRISK ESQ DIRECTOR
  • STORY LANDIS DIRECTOR
  • LOREN ENG PRESIDENT
  • DINAKAR SINGH BOARD CHAIRMAN
  • DOUGLAS COLE MD DIRECTOR
  • GERALD FISCHBACH MD DIRECTOR
  • ANDREW KNIGHT DIRECTOR
  • JONATHAN LEFF DIRECTOR
  • HELEN MEATES DIRECTOR
  • STEPHEN MIKITA ESQ DIRECTOR
  • JULI OH ESQ TREASURER
  • SIMON PRISK ESQ DIRECTOR
  • STORY LANDIS DIRECTOR
  • LOREN ENG PRESIDENT
  • DINAKAR SINGH BOARD CHAIRMAN
  • DOUGLAS COLE MD DIRECTOR
  • GERALD FISCHBACH MD DIRECTOR
  • ANDREW KNIGHT DIRECTOR
  • JONATHAN LEFF DIRECTOR
  • HELEN MEATES DIRECTOR
  • STEPHEN MIKITA ESQ DIRECTOR
  • JULI OH ESQ TREASURER
  • SIMON PRISK ESQ DIRECTOR
  • STORY LANDIS DIRECTOR
  • LOREN ENG PRESIDENT
  • DINAKAR SINGH BOARD CHAIRMAN
  • DOUGLAS COLE MD DIRECTOR
  • GERALD FISCHBACH MD DIRECTOR
  • ANDREW KNIGHT DIRECTOR
  • JONATHAN LEFF DIRECTOR
  • HELEN MEATES DIRECTOR
  • STEPHEN MIKITA ESQ DIRECTOR
  • JULI OH ESQ TREASURER
  • SIMON PRISK ESQ DIRECTOR
  • STORY LANDIS DIRECTOR
  • LOREN ENG PRESIDENT

Section VI

Filing History

Year-by-year financial summary from IRS 990-PF filings. Total assets and qualifying distributions show the foundation's growth and giving trajectory.

Year Total Assets Qualifying Distributions Total Revenue Total Expenses
2023 $33.7M $1.2M $12.5M $3.6M
2022 $24.1M $139K $25.4M $4.0M
2021 $2.0M $35K $123K $1.2M
2020 $3.6M $41K $3.4M $2.6M
2019 $1.5M $103K $193K $1.4M
2015 $859K $458K $5.5M $6.0M
2014 $1.4M $382K $3.4M $3.4M
2013 $1.1M $265K $3.3M $3.8M
2012 $1.2M $23K $3.4M $3.6M
2011 $1.6M $73K $3.6M $11.3M

Section VII

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