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Private Foundation · MA · Private Operating Foundations

Rare Disease Charitable Foundation

Lexington, MA  ·  EIN 453132103  ·  Website (ProPublica) ↗  ·  990s on ProPublica ↗

Assets

$1

Total Giving

$328.5M

Grants on File

2

Average Grant

$164.3M

Giving Radius

Where Rare Disease Charitable Foundation Has Given

AK — no grants on file AL — no grants on file AR — no grants on file AZ — no grants on file CA — no grants on file CO — no grants on file CT — no grants on file DC — no grants on file DE — no grants on file FL — no grants on file GA — no grants on file HI — no grants on file IA — no grants on file ID — no grants on file IL — no grants on file IN — no grants on file KS — no grants on file KY — no grants on file LA — no grants on file MA — $328.5M across 2 grants MD — no grants on file ME — no grants on file MI — no grants on file MN — no grants on file MO — no grants on file MS — no grants on file MT — no grants on file NC — no grants on file ND — no grants on file NE — no grants on file NH — no grants on file NJ — no grants on file NM — no grants on file NV — no grants on file NY — no grants on file OH — no grants on file OK — no grants on file OR — no grants on file PA — no grants on file RI — no grants on file SC — no grants on file SD — no grants on file TN — no grants on file TX — no grants on file UT — no grants on file VA — no grants on file VT — no grants on file WA — no grants on file WI — no grants on file WV — no grants on file WY — no grants on file
Historical grants to 2 recipients across 1 state. Top concentrations: Various ($328.5M, 2 grants).

Section I

How to Apply

No application guidelines on file — check the foundation's website directly.

On Unsolicited Proposals no

Section IV

Recent Grants

Recipient Amount Year
Approximately 389 Patients $157.2M 2021
Approximately 449 Patients $171.3M 2022

2 grants total

Section VI

Filing History

Year-by-year financial summary from IRS 990-PF filings. Total assets and qualifying distributions show the foundation's growth and giving trajectory.

Year Total Assets Qualifying Distributions Total Revenue Total Expenses
2015 $448K — $25.8M $25.6M
2014 $289K — $20.8M $21.1M
2013 $575K — $27.8M $27.3M
2012 $123K — $14.7M $14.8M
2011 $175K — $3.4M $3.3M

Section VII

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