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Private Foundation · MA

Dysimmune Neuromuscular Diseases Foundation

Lexington, MA  ·  EIN 451477924  ·  Website (ProPublica) ↗  ·  990s on ProPublica ↗

Assets

$397K

Total Giving

$2.8M

Grants on File

41

Average Grant

$68K

Giving Radius

Where Dysimmune Neuromuscular Diseases Foundation Has Given

AK — no grants on file AL — no grants on file AR — no grants on file AZ — no grants on file CA — $1.2M across 12 grants CO — no grants on file CT — no grants on file DC — no grants on file DE — no grants on file FL — no grants on file GA — no grants on file HI — no grants on file IA — no grants on file ID — no grants on file IL — no grants on file IN — no grants on file KS — no grants on file KY — no grants on file LA — no grants on file MA — $678K across 11 grants MD — $424K across 4 grants ME — no grants on file MI — $235K across 5 grants MN — no grants on file MO — $40K across 2 grants MS — no grants on file MT — no grants on file NC — no grants on file ND — no grants on file NE — no grants on file NH — no grants on file NJ — $28K across 1 grant NM — no grants on file NV — no grants on file NY — $144K across 4 grants OH — no grants on file OK — $46K across 1 grant OR — no grants on file PA — $2K across 1 grant RI — no grants on file SC — no grants on file SD — no grants on file TN — no grants on file TX — no grants on file UT — no grants on file VA — no grants on file VT — no grants on file WA — no grants on file WI — no grants on file WV — no grants on file WY — no grants on file
Historical grants to 27 recipients across 9 states. Top concentrations: Brookline ($470K, 3 grants), Ventura ($430K, 3 grants), Potomac ($424K, 4 grants), Sherman Oaks ($400K, 2 grants), Ann Arbor ($235K, 5 grants).

Section I

How to Apply

Proposals for medical research to advance IVIG care.

On Unsolicited Proposals yes

Restrictions

Funds are to be used for IVIG research only.

Section IV

Recent Grants

Recipient Amount Year
Dr Marinos Dalakas $96K 2020
University of California $75K 2020
Univeresity of Missouri $28K 2020
Dr Shireen Dunwoody $21K 2020
Dr Shalini Mahajan $200K 2020
Dr Samir Macwan $36K 2020
Dr Tariq J Alam $12K 2020
Dr Razzaque Ahmed $150K 2020
Dr Peter Novak $24K 2020
Dr Thomas Brannagan $36K 2020
Oklahoma Neurology Neuromuscular $46K 2020
Dr Nizar Souyah $28K 2020
Dr W King Engel $60K 2020
Regents of University of California $75K 2021
Dr Marinos Dalakas $136K 2021
Dr W King Engel $60K 2021
Dr Thomas Brannagan $36K 2021
Dr Peter Novak $24K 2021
Dr Samir Macwan $36K 2021
Dr Shalini Mahajan $209K 2021
General Hospital Corporation $37K 2021
Center for Blistering Disease $5K 2021
Thomas Jefferson University $2K 2022
Regents of UC Irvine $75K 2022
Mass General Hospital Research $33K 2022

Page 1 of 2 · 41 total

Section VI

Filing History

Year-by-year financial summary from IRS 990-PF filings. Total assets and qualifying distributions show the foundation's growth and giving trajectory.

Year Total Assets Qualifying Distributions Total Revenue Total Expenses
2023 $101K $5K $500K $676K
2022 $278K $20K $873K $782K
2021 $186K $20K $905K $810K
2020 $92K $5K $1.0M $974K
2019 $58K $2K $1.1M $1.1M
2015 $34K — $255K $520K
2014 $299K — $805K $519K
2013 $13K — $238K $257K
2012 $32K — $280K $250K
2011 $2K — $160K $158K

Section VII

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